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RYOBI ONE+ 18V Lithium-Ion 2.0 Ah Compact Battery and Charger Starter Kit PSK005 – The Home Depot
Amazon.com: 18V ONE+ 150 Watt POWER SOURCE : Automotive
Ryobi battery system
We used this battery system as backup power for the NIV initially. When it no longer worked with Steve’s ventilator, we kept the batteries for other backup needs such as laptop and phone charging. We also bought the camping addon which includes a fan and flashlight. We have used the flashlight during power outages. We use the fan to keep Steve cool. We have used it during the power outage and on the Walk to Defeat ALS.
- Description
- Ventilation Backup Power Estimates
- Additional information
- Steve’s stages of ALS
- Reviews (0)
Backup power is essential when your basic needs like breathing require a machine. Most of the equipment we use has battery power like our ventilator and our lifts. The onboard power is usually sufficient but typically only lasts 4 – 8 hours depending on usage. But we wanted to be prepared for power outages and travel.
We had a situation where Steve’s NIV ran out of battery power at an event. We were able to get it plugged in, but it was going to take hours to charge before we could go home safely. Friends and family jumped into help. Our friends got us the Ryobi battery solution and our son in law brought our large generator from home about an hour away. We got home safely, and the importance of backup power was reinforced.
Ventilation Backup Power Estimates
Additional information
| Steve’s ALS stage | Late, Middle |
|---|---|
| ALS toolboxes |
We are using these stages to help you understand when these tools and apps were most effective for Steve.
EARLY STAGE | July 2021 – November 2022
From first symptoms to the walker
Key points
• No ventilation
• Able to walk without help
• Limited upper limb function
MIDDLE STAGE | November 2022 – August 2023
From walker to power chair
Key points
• Limited ventilation with an NIV
• Help needed to transfer
• Limited upper and lower limb function
• Work transitions
• Supplemental nutrition through feeding tube
LATE STAGE | August 2023 – Current
Power chair
Key points
• 50% to full time ventilation
• From NIV to tracheostomy
• Lift transfers
• Loss of limb function
• Most nutrition through feeding tube
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