Data on Wheels ~ ALS

Cushion for a shower chair
Cushion for a shower chair - Image 2

Cushion for a shower chair

This waterproof cushion with fixing straps solved the problem of painful sitting on a hard shower chair seat for someone with ALS who had lost natural muscle padding in the buttocks area. The cushion provides soft, comfortable padding that protects the tailbone during extended sitting periods. Customers praise its comfort, easy cleaning, quality construction, and versatile fit for various chairs including shower chairs, toilets, and bedside commodes.

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Description

We have a really nice shower chair, but the seat is not very comfortable. It’s painful for Steve to sit on for very long with his natural butt cushion diminished due to ALS. His tailbone would hurt. We tried a couple of options but landed on this one. It is waterproof and can be strapped on chair.

MINIVON Bedside Commode Cushion, Universal Fit, Commode Seat Cushion for Elderly, Soft Seat Pad Cover Toilet Seat, Padded Camping Toilet, Commode Chair Cushion 17″ x 17″ with Fixing Straps
Amazon.com: MINIVON Bedside Commode Cushion, Universal Fit, Commode Seat Cushion for Elderly, Soft Seat Pad Cover Toilet Seat, Padded Camping Toilet, Commode Chair Cushion 17″ x 17″ with Fixing Straps : Health & Household
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Additional information

Steve’s ALS stage

Late, Middle
ALS toolboxes

We are using these stages to help you understand when these tools and apps were most effective for Steve.

EARLY STAGE | July 2021 – November 2022

From first symptoms to the walker

Key points
• No ventilation
• Able to walk without help
• Limited upper limb function

MIDDLE STAGE | November 2022 – August 2023

From walker to power chair

Key points
• Limited ventilation with an NIV
• Help needed to transfer
• Limited upper and lower limb function
• Work transitions
• Supplemental nutrition through feeding tube

LATE STAGE | August 2023 – Current

Power chair

Key points
• 50% to full time ventilation
• From NIV to tracheostomy
• Lift transfers
• Loss of limb function
• Most nutrition through feeding tube

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