Data on Wheels ~ ALS

Hose holder clip

Hose holder clip

Hose management 101. Keeping hoses straight for noninvasive or invasive ventilation is a must. They help caregivers with organization and pALS with comfort.

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Description

This is a simple, effective way to manage ventilator hoses. They can be clipped to clothing, bedding, and the seat cover on the power chair. These clips reduce the pull on Steve’s trach.

CPAP Hose Holder Clip – Oxygen Tube/Cannula Holder – Tangle Free CPAP Tube System for Uninterrupted Sleep Therapy – 3 Pack
Buy CPAP Hose Holder Clip – Oxygen Tube/Cannula Holder – Tangle Free CPAP Tube System for Uninterrupted Sleep Therapy – 3 Pack on Amazon.com ✓ FREE SHIPPING on qualified orders
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Additional information

Steve’s ALS stage

Late, Middle
Ventilation type

Invasive, Noninvasive
ALS toolboxes

We are using these stages to help you understand when these tools and apps were most effective for Steve.

EARLY STAGE | July 2021 – November 2022

From first symptoms to the walker

Key points
• No ventilation
• Able to walk without help
• Limited upper limb function

MIDDLE STAGE | November 2022 – August 2023

From walker to power chair

Key points
• Limited ventilation with an NIV
• Help needed to transfer
• Limited upper and lower limb function
• Work transitions
• Supplemental nutrition through feeding tube

LATE STAGE | August 2023 – Current

Power chair

Key points
• 50% to full time ventilation
• From NIV to tracheostomy
• Lift transfers
• Loss of limb function
• Most nutrition through feeding tube

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