Ryobi battery system

We used this battery system as backup power for the NIV initially. When it no longer worked with Steve’s ventilator, we kept the batteries for other backup needs such as laptop and phone charging. We also bought the camping addon which includes a fan and flashlight. We have used the flashlight during power outages. We use the fan to keep Steve cool. We have used it during the power outage and on the Walk to Defeat ALS.

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RYOBI ONE+ 18V Lithium-Ion 2.0 Ah Compact Battery and Charger Starter Kit PSK005 – The Home Depot

RYOBI ONE+ 18V Cordless 3-Tool Campers Kit with Area Light, Bluetooth Speaker, 4 in. Clamp Fan, 1.5 Ah Battery, and Charger PCL1303K1 – The Home Depot

Amazon.com: 18V ONE+ 150 Watt POWER SOURCE : Automotive

Amazon.com: Ryobi 18-Volt Camping Kit – with Clamp Fan, Flashlight, Inverter, (1) 4Ah Battery and Charger (Bulk Packaged), Green : Automotive

 

As an Amazon Associate, I earn from qualifying purchases.

Backup power is essential when your basic needs like breathing require a machine. Most of the equipment we use has battery power like our ventilator and our lifts. The onboard power is usually sufficient but typically only lasts 4 – 8 hours depending on usage. But we wanted to be prepared for power outages and travel.

We had a situation where Steve’s NIV ran out of battery power at an event. We were able to get it plugged in, but it was going to take hours to charge before we could go home safely. Friends and family jumped into help. Our friends got us the Ryobi battery solution and our son in law brought our large generator from home about an hour away. We got home safely, and the importance of backup power was reinforced.


VOCSN Ventilator Power Estimates

Measured Power Assumptions

Scenario Estimated Average Load Notes
VOCSN ventilation only 35 W Measured normal usage. Brief peaks were about 40 W to 45 W every 5 seconds.
VOCSN ventilation with 2 LPM oxygen 60 W Estimated average based on cycling peaks around 160 W every 5 to 6 seconds.
Surface Pro with eye gaze controller 40 W Used for travel estimates with external power stations only.
Important: The Surface Pro and eye gaze controller cannot be powered by the VOCSN batteries. Surface estimates are only included with the Jackery and Anker external power stations.

VOCSN Batteries Only

Battery Source Capacity Vent Only With 2 LPM Oxygen
VOCSN internal battery 56 Wh 2 hrs @ 35 W 1 hr @ 60 W
VOCSN detachable batteries 167 Wh 5 hrs @ 35 W 3 hrs @ 60 W
VOCSN internal + detachable batteries 223 Wh 6 hrs @ 35 W 4 hrs @ 60 W

External Power Stations: VOCSN Only

Power Source Usable Capacity Vent Only With 2 LPM Oxygen
Jackery Explorer 1000 v2 963 Wh 28 hrs @ 35 W 16 hrs @ 60 W
Anker SOLIX F2000 1843 Wh 53 hrs @ 35 W 31 hrs @ 60 W

External Power Stations: VOCSN + Surface Pro + Eye Gaze

Power Source Vent Only Total Load Vent Only Runtime Oxygen Total Load Oxygen Runtime
Jackery Explorer 1000 v2 75 W 13 hrs 100 W 10 hrs
Anker SOLIX F2000 75 W 25 hrs 100 W 18 hrs

Quick Planning Summary

VOCSN batteries only
Vent only: 6 hrs
With oxygen: 4 hrs
Jackery, VOCSN only
Vent only: 28 hrs
With oxygen: 16 hrs
Anker, VOCSN only
Vent only: 53 hrs
With oxygen: 31 hrs
Travel setup with Surface
Jackery: 13 hrs vent, 10 hrs oxygen
Anker: 25 hrs vent, 18 hrs oxygen
Runtime estimates use whole-number rounding and are based on measured or estimated average wattage. Actual runtime can vary based on ventilator settings, oxygen use, battery age, temperature, charging behavior, and inverter efficiency.

 

Additional information

Steve’s ALS stage

Late, Middle

ALS toolboxes

We are using these stages to help you understand when these tools and apps were most effective for Steve.

EARLY STAGE | July 2021 – November 2022

From first symptoms to the walker

Key points
• No ventilation
• Able to walk without help
Limited upper limb function

MIDDLE STAGE | November 2022 – August 2023

From walker to power chair

Key points
• Limited ventilation with an NIV
• Help needed to transfer
Limited upper and lower limb function
• Work transitions
Supplemental nutrition through feeding tube

LATE STAGE | August 2023 – Current

Power chair

Key points
• 50% to full time ventilation
• From NIV to tracheostomy
Lift transfers
Loss of limb function
Most nutrition through feeding tube

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