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RYOBI ONE+ 18V Lithium-Ion 2.0 Ah Compact Battery and Charger Starter Kit PSK005 – The Home Depot
Amazon.com: 18V ONE+ 150 Watt POWER SOURCE : Automotive
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We used this battery system as backup power for the NIV initially. When it no longer worked with Steve’s ventilator, we kept the batteries for other backup needs such as laptop and phone charging. We also bought the camping addon which includes a fan and flashlight. We have used the flashlight during power outages. We use the fan to keep Steve cool. We have used it during the power outage and on the Walk to Defeat ALS.
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RYOBI ONE+ 18V Lithium-Ion 2.0 Ah Compact Battery and Charger Starter Kit PSK005 – The Home Depot
Amazon.com: 18V ONE+ 150 Watt POWER SOURCE : Automotive
As an Amazon Associate, I earn from qualifying purchases.
Backup power is essential when your basic needs like breathing require a machine. Most of the equipment we use has battery power like our ventilator and our lifts. The onboard power is usually sufficient but typically only lasts 4 – 8 hours depending on usage. But we wanted to be prepared for power outages and travel.
| Scenario | Estimated Average Load | Notes |
|---|---|---|
| VOCSN ventilation only | 35 W | Measured normal usage. Brief peaks were about 40 W to 45 W every 5 seconds. |
| VOCSN ventilation with 2 LPM oxygen | 60 W | Estimated average based on cycling peaks around 160 W every 5 to 6 seconds. |
| Surface Pro with eye gaze controller | 40 W | Used for travel estimates with external power stations only. |
| Battery Source | Capacity | Vent Only | With 2 LPM Oxygen |
|---|---|---|---|
| VOCSN internal battery | 56 Wh | 2 hrs @ 35 W | 1 hr @ 60 W |
| VOCSN detachable batteries | 167 Wh | 5 hrs @ 35 W | 3 hrs @ 60 W |
| VOCSN internal + detachable batteries | 223 Wh | 6 hrs @ 35 W | 4 hrs @ 60 W |
| Power Source | Usable Capacity | Vent Only | With 2 LPM Oxygen |
|---|---|---|---|
| Jackery Explorer 1000 v2 | 963 Wh | 28 hrs @ 35 W | 16 hrs @ 60 W |
| Anker SOLIX F2000 | 1843 Wh | 53 hrs @ 35 W | 31 hrs @ 60 W |
| Power Source | Vent Only Total Load | Vent Only Runtime | Oxygen Total Load | Oxygen Runtime |
|---|---|---|---|---|
| Jackery Explorer 1000 v2 | 75 W | 13 hrs | 100 W | 10 hrs |
| Anker SOLIX F2000 | 75 W | 25 hrs | 100 W | 18 hrs |
| Steve’s ALS stage | Late, Middle |
|---|---|
| ALS toolboxes |
We are using these stages to help you understand when these tools and apps were most effective for Steve.
From first symptoms to the walker
Key points
• No ventilation
• Able to walk without help
• Limited upper limb function
From walker to power chair
Key points
• Limited ventilation with an NIV
• Help needed to transfer
• Limited upper and lower limb function
• Work transitions
• Supplemental nutrition through feeding tube
Power chair
Key points
• 50% to full time ventilation
• From NIV to tracheostomy
• Lift transfers
• Loss of limb function
• Most nutrition through feeding tube
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