Data on Wheels ~ ALS

VOCSN, ventilator

VOCSN, ventilator

When Steve got his tracheostomy, we were concerned about how much equipment we would need to travel with. We were very happy to get a VOCSN. – Ventilator – Oxygen – Cough – Suction – Nebulizer

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Description

This all-in-one Ventilator has been great. It reduces the amount of equipment we need. We still use our other suction machine because it is bigger than the one on the ventilator. The oxygen feature has a concentrator so it can produce oxygen and can use external oxygen. We have an external concentrator we use when Steve is in bed. When we are on the move, we use oxygen and suction on the VOCSN.

Learn more 

VOCSN Multi-Function Ventilator
VOCSN is the first and only multi-function ventilator that combines multiple respiratory therapies—traditionally provided by separate pieces of equipment—into one device for ALS patients.
Ventec Life Systems
Smallest portable ventilator with integrated oxygen concentrator, cough assist, suction machine, and nebulizer for medical use in hospital or home.
VOCSN Home Caregiver and Patient Guide

 

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Backup power is essential when your basic needs like breathing require a machine. Most of the equipment we use has battery power like our ventilator and our lifts. The onboard power is usually sufficient but typically only lasts 4 – 8 hours depending on usage. But we wanted to be prepared for power outages and travel.

We had a situation where Steve’s NIV ran out of battery power at an event. We were able to get it plugged in, but it was going to take hours to charge before we could go home safely. Friends and family jumped into help. Our friends got us the Ryobi battery solution and our son in law brought our large generator from home about an hour away. We got home safely, and the importance of backup power was reinforced.

Ventilation Backup Power Estimates

Additional information

Steve’s ALS stage

Late
Ventilation type

Invasive
ALS toolboxes

We are using these stages to help you understand when these tools and apps were most effective for Steve.

EARLY STAGE | July 2021 – November 2022

From first symptoms to the walker

Key points
• No ventilation
• Able to walk without help
• Limited upper limb function

MIDDLE STAGE | November 2022 – August 2023

From walker to power chair

Key points
• Limited ventilation with an NIV
• Help needed to transfer
• Limited upper and lower limb function
• Work transitions
• Supplemental nutrition through feeding tube

LATE STAGE | August 2023 – Current

Power chair

Key points
• 50% to full time ventilation
• From NIV to tracheostomy
• Lift transfers
• Loss of limb function
• Most nutrition through feeding tube

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