This is a tricky question. ALS typically doesn’t cause pain itself. However, the effects of losing muscle can cause joint and ligament pain. I take Gabapentin to manage that specific pain. Other people with ALS have different experiences with pain. I also have had cramping and muscle aches. Most of my pain is managed with Gabapentin and Tylenol.

The other thing that helps a lot is when my caregivers do range of motion. Range of motion is when they move and stretch my limbs. This can keep my joints and what is left of my muscles limber. This tends to reduce stiffness which helps keep the pain away.