My response to this question is “Why not me?” This question is often wrapping a different and more difficult question. Why did God do this to you? Or why did God allow this?

Before I dig into this, I want to be clear. I am a Christian and believe in a powerful and loving God. I also believe we live in an imperfect and fallen world (that seems obvious). This reality is the foundation for my answer.

So, why me? Because I live in this world like everyone else. Being a Christian does not mean I will not suffer. It also does not mean that I did something to deserve it. While I know I am not perfect, I do not believe this disease is punishment for my sin. I do believe that disease and suffering are a part of our fallen world, and I am part of it.

When Sheila and I found out that I had ALS, we were sad and asked, why us? We leaned on our faith and trust in God. We trusted that God has a plan for us. We still do. We don’t know what His plans are, but we trust Him. So, why not me? In some ways, I think that our faith makes us better equipped to live with ALS. It does not make it easier or without sadness. I don’t like having ALS, but I know God will be with me through it all. When my time on earth is over, I know I will be free of this disease and maybe I can ask God about his plan. Until then, I will trust and lean on Him.

“For I know the plans I have for you,” says the Lord. “They are plans for good and not for disaster, to give you a future and a hope.”

Jeremiah 29:11, NLT