Description
How you control your power chair is a combination of ability and preference. By the time Steve got his chair, he had lost his ability to use his arms and hands. He never had the opportunity to use the joystick.
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Eye control, Ability Drive
After Steve’s feet could no longer use the foot control, we pursued the Ability Drive which would enable Steve to control his power chair using his Tobii device. We tried it out and liked it. The only real issue is that it doesn’t work well or at all outside. Our Ability Drive system was covered by insurance.
Additional information
| Steve’s ALS stage | Late |
|---|---|
| ALS toolboxes |
We are using these stages to help you understand when these tools and apps were most effective for Steve.
EARLY STAGE | July 2021 – November 2022
From first symptoms to the walker
Key points
• No ventilation
• Able to walk without help
• Limited upper limb function
MIDDLE STAGE | November 2022 – August 2023
From walker to power chair
Key points
• Limited ventilation with an NIV
• Help needed to transfer
• Limited upper and lower limb function
• Work transitions
• Supplemental nutrition through feeding tube
LATE STAGE | August 2023 – Current
Power chair
Key points
• 50% to full time ventilation
• From NIV to tracheostomy
• Lift transfers
• Loss of limb function
• Most nutrition through feeding tube
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