Video Library: Life with ALS, By Steve Hughes

Heading to the farm in Virginia with Robert, Adam, and David.
On the way home through the frosty Iowa.
The Badlands National Park on family vacation.
Heading to the farm in Virginia with Robert, Adam, and David.
On the road in Joshua Tree National Park with Kristyna.
Celebrating our anniversary on the Big Island in Hawaii.

Video library

Welcome to our video library

This is a collection of videos created by Steve. They are both helpful and humorous.

Join with Steve in his journey dealing with ALS and day to day living. These videos focus on non-technical topics and events and more about the various things that Steve is doing to either live better or just share a great experience.

Steve's ALS Story May 2023

Living with ALS – Presenting and Public Speaking

Living with ALS – First Trip through the Airport with the Wheelchair

Living with ALS: Bowling with the Family

Living with ALS: Finding the Joys in Life

Updated Ramp #shorts #livingwithals

Eclipsing with ALS #shorts #ramplife #livingwithals #eclipse

Going to the Office #shorts #livingwithals #workingwithals #als

First time presenting with a mask #shorts #livingwithals #workingwithals

Getting lifted out of bed #shorts #livingwithals #als #dataonwheels

Getting to the fire pit #livingwithals #als #shorts

May the 4th be with you #livingwithals #shorts #starwars

ALS & Emergencies #livingwithals #als #shorts

From Walking to Power Chair #livingwithals #wheelchair #als #shorts

Using my deck elevator #livingwithals #wheelchair #als #shorts

Haircut in a Wheelchair #livingwithals #wheelchair #als #shorts

ALS Walk 2023, Join us in 2024 #dataonwheelsals #livingwithals #als #walktodefeatals #shorts

June 2024 Steve's ALS Story Update

Packing – #TravelingWithALS #livingwithals #als #shorts

My 53rd Birthday #livingwithals #starwars #als #shorts

This playlist includes a variety of videos related to how I am able to keep working in spite of ALS. This is more of a catch all playlist as opposed to a series around a specific tool. This is also where I will include various public meetings where I share my working story

Working with ALS: Tools and Software Presented at KY ALS Resource Meeting July 2023

Creating a newsletter with eye gaze and Brevo

Going to the Office #shorts #livingwithals #workingwithals #als

First time presenting with a mask #shorts #livingwithals #workingwithals

MVP Unboxing #shorts #mvpbuzz #workingwithals

Living with ALS – Presenting and Public Speaking

This playlist focuses on using Voice Access to continue working in my environment. Voice Access is a tool included with Windows 11 which enables the use of commands and dictation. Videos in this playlist highlight how I am using Voice Access to continue working.

Working with ALS: Voice Access – Introduction and Setup

Working with ALS: Voice Access – Using Grid Overlays

Working with ALS: Voice Access – Working with Number Overlays

Working with ALS: Voice Access – Navigating Web Pages

Working with ALS: Voice Access – Changing Modes

Working with ALS: Voice Access – Real World Dictation