Welcome to our Articles & Resources hub. Here you will find our latest articles and our recommended resources. If you are interested in more articles on a subject, we have a curated set on the Articles page.
Our resources are organized here. Whether you are looking for blogs, Facebook groups, YouTube videos, or something else, we have these resources available. We also have some online tools and other resources you can use or sign up for.
If you are looking for something or have something to contribute let us know with the Contact us form. We welcome any contributions.
Our latest finds
Here are some of the articles we have found interesting lately.
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ALS Resources
These resources cover a variety of topics to help us live with ALS. This includes blogs, channels, and guides from individuals and families dealing with ALS. We also have numerous resources from health professionals and vendors. We are also have added some Facebook groups that provide support and insights into living with ALS.
Our video series ‘ALS & Communication’ problem solves common issues that arise in using eye-gaze devices and other assistive technologies.
We have collected a few resources specifically to help caregivers.
Caregivers need to track a mix of activities while caring for their pALS. This can include medications, feeding, stretching, and toileting. Hopefully, these logbooks can help or give you some ideas.
Do you want to learn more about caregiving? These learning opportunities help you prepare or fill some gaps. Hopefully, they can help you feel more comfortable with this role, whether it is intentional, accidental, or professional.
Use these resources to learn the about the various metrics used throughout our diagnosis and treatment. We have additional information on our FAQ.
The ALS Functional Rating Scale – Revised (ALSFRS-R) is the most widely used clinical tool for assessing physical function and disease progression in individuals with amyotrophic lateral sclerosis (ALS). It was introduced in 1999 as an update to the original ALSFRS (1991) to better capture respiratory function alongside bulbar and limb domains.
Forced Vital Capacity (FVC) is a key measurement in respiratory health that represents the maximum volume of air a person can forcefully exhale after taking the deepest breath possible. It is typically assessed using spirometry, a common pulmonary function test.
This calculator was developed to help ALS patients understand their nutritional needs and adapt as the disease progresses.
The following ALS centers contributed to the research :
Developed with research support from the National Institute of Neurological Disorders and Stroke (NINDS) – NS 045087. Additional Support: Cynthia Shaw Crispen Endowment, Kevin Heidrich/Team 7 Endowment, ALS Hope Foundation.
Much of our research information comes as articles. This section is focused on how to participate in research and how to view the results of various projects.
