Articles

This is a curated selection of articles about various ALS topics we find interesting and helpful.

These articles cover the various aspects of life with ALS.

This Startup Wants to Put Its Brain-Computer Interface in the Apple Vision Pro

California-based Cognixion is launching a clinical trial to allow paralyzed patients with speech disorders the ability to communicate without an invasive brain implant.

Maximizing lung function with ALS – ALS News Today

Learn strategies to maximize lung function with ALS, including breathing exercises, ventilation options, and lifestyle adjustments.

Keeping your mind active with ALS – ALS News Today

Cognitive engagement through activities, adaptations, and balance is key for those with ALS, as it supports thinking, mood, and connection.

The elephant in the room: How ALS changed my mental clock

Columnist Dagmar Munn says her ALS diagnosis unexpectedly changed her mental clock. Every second of life became significant, she says.

Welcome to My Eye Gaze World – Imperfections of the Human State

I took it for granted that you all know that I use eye gaze technology (I type with my eyes) to communicate in all forms: speaking, texting, and writing everything from emails to this blog post. That is, I took it for granted until my sister, Sephrah, said something that made me realize that only

ALS and fatigue: Tips for daily living – ALS News Today

Dealing with ALS fatigue is not easy, but energy preservation techniques, self-care, and caregiver support can make a difference.

The Reform that Didn’t Require a Shutdown

A little-noticed change will let millions more Americans use health spending accounts.

How I set fitness goals — and achieve them — in life with ALS

Improvement may seem unlikely for people with ALS, but columnist Dagmar Munn shares how she’s learned to set health goals — and achieve them.

Riluzole, high glycemic index diet may slow ALS progression: Study

Riluzole treatment and a diet containing high glycemic index foods interact ‘synergistically’ to slow ALS progression, according to a study.

New wheelchair technology boosts independence for people with ALS

New wheelchair technology for ALS users is advancing. Jason Parsons shares how adaptive vans and drive controls bring freedom, independence.

Guest Voice: The ALS progression story we don’t often see

Faced with a rapidly progressing form of ALS, Iomar Barrett describes the disease trajectory that’s less common on social media.

“Trached “ Chapter 145 – David’s ALS Journey

I don’t know about you, but I really love when I get a text/email asking for help. Not spam or some other BS, but the kind of message where I can really help. This week I received two different requests for information regarding my trach experience, so I thought instead of only answering those emails directly, I will make it the subject of this week’s blog.Note: What topic do you want me to write about for a future post?Q: I’m getting my trach next week, any tips?Oh boy do I ever. We have learn

“That’s Scary” Chapter 151 – David’s ALS Journey

When I first got my tracheostomy, one of my biggest fears was choking on mucus or having something go down my esophagus. I couldn’t imagine how horrifying that would be. I was afraid to shower and definitely avoided putting anything in my mouth. I would even panic during dental cleanings if my caregiver used too much water. After battling pneumonia twice and emerging victorious, I wasn’t looking for a trilogy.Over the years I have often dreamt of drinking a cup of coffee or indulging in some ice

Articles about caregivers and caregiving.

How to support people affected by ALS

Columnist Kristin Neva describes the three main types of ALS support that families need, having lived with the disease for 15 years.

When ALS overshadows other parts of your identity

Columnist Kristin Neva compares how ALS affects various parts of your identity, whether you’re a patient or a caregiver.

The ongoing turnover of ALS caregivers is challenging to manage

Even after 15 years with her husband’s ALS, losing caregivers still brings about grief and stress for columnist Kristin Neva.

Relearning to be kind to myself as an ALS spouse and caregiver

When columnist Kristin Neva needs to be reminded to be kind to herself as an ALS caregiver, she remembers an old lesson from her younger self.

As an ALS caregiver, I find solidarity in others who walk a…

Oprah’s interview with Emma Heming Willis resonated with columnist Kristin Neva, who reflects on life as an ALS caregiver.

How life has changed since my husband’s first birthday with ALS

As her husband, Todd, celebrates his 55th birthday, columnist Kristin Neva reflects on what’s changed since his diagnosis 15 years ago.

Finding Strength Together: Dave and Natalie Hall’s ALS Journey

How to Coach Your Caregiver: Make it a Ham Sandwich

ALS patient Dagmar Munn describes a strategy to help improve communication between the caregiver and patient, and even family and friends.

7 communication tips for ALS caregivers | ALS News Today

Caregivers can keep communication going for people living with ALS by using tools, patience, and clear language.

There is a lot of research being done around ALS. Here are some of the articles we found interesting.

Genetic activity in blood could help detect ALS, predict survival

Researchers have developed a novel approach to detect ALS and predict survival by measuring genetic activity in blood cells, a study found.

Study IDs better method to detect genetic defects in sporadic ALS

Long-read DNA sequencing was found to be a more accurate method for detecting genetic defects linked to an increased risk of sporadic ALS.

Blood test could diagnose ALS years before symptoms appear

Researchers have developed a blood-based test that shows high accuracy for diagnosing ALS as early as up to 10 years before symptom onset.

Clene to seek accelerated approval of ALS drug CNM-Au8 in 2026

Clene is planning to submit an application to the FDA in early 2026 requesting the accelerated approval of CNM-Au8 for ALS.

ALS and MS have very strong geographic association, study finds

ALS is more common in some parts of the U.S. than others and it has a very strong geographic association with MS, a new study suggests.

Device for slowing ALS progression wins FDA breakthrough status

MyoRegulator, a device to be used at home to slow disability progression in ALS, has been granted breakthrough device designation by the FDA.

QRL-101 reduces motor-neuron hyperexcitability in ALS trial

QRL-101, an oral small molecule being developed by QurAlis, was safe and reduced nerve-cell overactivity in ALS patients in an early study.

RNA ‘Quality Control’ System Breaks Down in ALS – Les Turner ALS Foundation

A study from the Les Turner ALS Center at Northwestern Medicine has shed light on a critical molecular mechanism underlying amyotrophic lateral sclerosis (ALS), according to findings published in the journal Neuron. The research points to a failure in the … Read More

New blood and spinal fluid biomarkers identified for tracking ALS…

Researchers have identified new blood and spinal fluid biomarkers that could help track ALS progression and monitor treatment response

Immune checkpoints may predict ALS severity, progression

Immune checkpoint proteins may be linked to ALS disease severity and progression, according to a small study.

Targeting FGF21 hormone may slow ALS disease progression

The hormone FGF21 may protect against rapid ALS disease progression and increase survival, a study reported.

Blood test may track ALS progression, speed diagnosis

Researchers developed a cell-free DNA blood test that accurately distinguishes ALS from other neurological diseases and tracks progression.

Slow and steady wins the race to intelligibility for ALS patients

Experiment found that speaking slowly helped those with neurodegenerative diseases be understood more than trying to speak clearly