Head support for your ride

This head support is a great alternative restraint solution for those of who need help with floppy heads. It is secure and comfortable, and it works with power chairs.

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Description

We tried a couple of head restraints including one built into the headrest of Steve’s chair. We ran into a couple of issues for him. One issue was  comfort. They were made of uncomfortable material or they were too tight. No one wanted his head to explode. This leads to the second issue which was slippage. A head restraint isn’t very helpful if it won’t restrain.

We discussed this with our chair tech Roddy from Apex Mobility. He gave us one of these baby head restraints to try. It worked for us. It is very comfortable, it’s made for babies after all. We like it because it can be tightened but is still elastic enough to be comfortable. It still slips on occasion, but it still holds very well.

I would definitely recommend this option. Eventually, we may need to upgrade to the expensive option, but until then, we will treat my head like a baby.

Additional information

Steve’s ALS stage

Late, Middle

ALS toolboxes

We are using these stages to help you understand when these tools and apps were most effective for Steve.

EARLY STAGE | July 2021 – November 2022

From first symptoms to the walker

Key points
• No ventilation
• Able to walk without help
• Limited upper limb function

MIDDLE STAGE | November 2022 – August 2023

From walker to power chair

Key points
• Limited ventilation with an NIV
• Help needed to transfer
• Limited upper and lower limb function
• Work transitions
• Supplemental nutrition through feeding tube

LATE STAGE | August 2023 – Current

Power chair

Key points
• 50% to full time ventilation
• From NIV to tracheostomy
• Lift transfers
• Loss of limb function
• Most nutrition through feeding tube

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