A manual communication board is necessary when you are unable to speak clearly or at all, and you don’t have a communication device available.
This printout was a lifesaver right after I got my tracheostomy. I had no way to communicate because I didn’t have my Tobii device yet. Sheila had a couple copies ready to go. It was not fast, but it was effective. I would recommend you always have them on hand to be prepared for any issues with your communication device.
The documents are available for free from BridgingVoice.
| Steve’s ALS stage | Late |
|---|---|
| ALS toolboxes |
We are using these stages to help you understand when these tools and apps were most effective for Steve.
From first symptoms to the walker
Key points
• No ventilation
• Able to walk without help
• Limited upper limb function
From walker to power chair
Key points
• Limited ventilation with an NIV
• Help needed to transfer
• Limited upper and lower limb function
• Work transitions
• Supplemental nutrition through feeding tube
Power chair
Key points
• 50% to full time ventilation
• From NIV to tracheostomy
• Lift transfers
• Loss of limb function
• Most nutrition through feeding tube
Copyright 2025-2026 | Steve Hughes, Data on Wheels
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