Data on Wheels ~ ALS

Acapela - voice banking

Acapela – voice banking

Early in Steve’s diagnosis, we decided to bank his voice. We were wisely advised to do it while his voice was strong. We worked with Team Gleason to cover the costs. We highly recommend that you bank your voice before you think you might need it. We used Acapela, but there may be other options available.

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Description

Steve’s banked voice works in both TD Snap and Communicator. His voice is a little robotic sounding, but it definitely sounds like him.

Learn more about how Team Gleason can help you bank your voice for free.

Voice Preservation – Team Gleason
If there is a cost associated with voice banking, message banking, or purchasing a completed voice file, Team Gleason may be able to help. We can provide loaner equipment for the voice preservation process or offer financial assistance to cover the cost of a voice file, if needed.
Acapela Group | ‘My-Own-Voice’
Individuals diagnosed with speech or language disorders can create a digital copy of their voice, and keep their ability to use their own voice. CES23 Innovation Award

Voice banking and voice cloning are different, but they both preserve our voice.

Voice banking requires you to record phrases which are used to create an artificial voice. I used Acapela which is free through Team Gleason. This voice is a little mechanical sounding and can be downloaded on your computer.

Voice cloning uses new or existing recordings like videos or voice mails to create a natural sounding voice with AI. This is done with ElevenLabs and Bridging Voice. This voice requires an internet connection to use.

Both are free through the organizations I mentioned above. I recommend doing both.

You can find links here to get you started.

Acapela – voice banking | Data on Wheels ~ ALS

ElevenLabs – voice clone | Data on Wheels ~ ALS

Additional information

Steve's ALS stage

Mid, Late
ALS toolboxes

We are using these stages to help you understand when these tools and apps were most effective for Steve.

EARLY STAGE | July 2021 – November 2022

From first symptoms to the walker

Key points
• No ventilation
• Able to walk without help
• Limited upper limb function

MIDDLE STAGE | November 2022 – August 2023

From walker to power chair

Key points
• Limited ventilation with an NIV
• Help needed to transfer
• Limited upper and lower limb function
• Work transitions
• Supplemental nutrition through feeding tube

LATE STAGE | August 2023 – Current

Power chair

Key points
• 50% to full time ventilation
• From NIV to tracheostomy
• Lift transfers
• Loss of limb function
• Most nutrition through feeding tube

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