Data on Wheels ~ ALS

SPEAX

SPEAX

Steve used the SPEAX device to amplify his voice while wearing a mask with his non-invasive ventilator which helped him communicate. This device is not generally available anymore.

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Description

I used this voice amplification system with masks that covered my mouth. The mic sticks to the mask and is disposable. It was only available with a prescription when I used it, but it was not covered by insurance.

Disappointingly, the company that created SPEAX was not able to continue making them in 2026. They sold their inventory to a medical supplier in Australia. There may be some available at ALS clinics as well. I recommend looking at ChatterVox as an alternative option. This is a sad situation where a good tool could not be maintained in the marketplace.

 

Here is the distributor in Australia if you are in that area.

Speax Communication System for Non-Invasive Ventilation – BMedical
Speax gives patients their voice back during BiPAP and NIV therapy. The system includes a disposable patch and a reusable amplifier to enable clear, audible speech while wearing a mask.
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Additional information

Steve’s ALS stage

Middle
ALS toolboxes

We are using these stages to help you understand when these tools and apps were most effective for Steve.

EARLY STAGE | July 2021 – November 2022

From first symptoms to the walker

Key points
• No ventilation
• Able to walk without help
• Limited upper limb function

MIDDLE STAGE | November 2022 – August 2023

From walker to power chair

Key points
• Limited ventilation with an NIV
• Help needed to transfer
• Limited upper and lower limb function
• Work transitions
• Supplemental nutrition through feeding tube

LATE STAGE | August 2023 – Current

Power chair

Key points
• 50% to full time ventilation
• From NIV to tracheostomy
• Lift transfers
• Loss of limb function
• Most nutrition through feeding tube

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