Description
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Early in Steve’s diagnosis, we decided to bank his voice. We were wisely advised to do it while his voice was strong. We worked with Team Gleason to cover the costs. We highly recommend that you bank your voice before you think you might need it. We used Acapela, but there may be other options available. Steve’s banked voice works in both TD Snap and Communicator. His voice is a little robotic sounding, but it definitely sounds like him.
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| Steve's ALS stage | Mid, Late |
|---|---|
| ALS toolboxes |
We are using these stages to help you understand when these tools and apps were most effective for Steve.
From first symptoms to the walker
Key points
• No ventilation
• Able to walk without help
• Limited upper limb function
From walker to power chair
Key points
• Limited ventilation with an NIV
• Help needed to transfer
• Limited upper and lower limb function
• Work transitions
• Supplemental nutrition through feeding tube
Power chair
Key points
• 50% to full time ventilation
• From NIV to tracheostomy
• Lift transfers
• Loss of limb function
• Most nutrition through feeding tube
Copyright 2025-2026 | Steve Hughes, Data on Wheels
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