Data on Wheels ~ ALS

Amazon Echo
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Amazon Echo

We have several Amazon Echo smart speakers in the house. We use several variations of Echoes including one with video. With the devices throughout the house, we are able to use Alexa wherever we are which is really convenient. Steve got a Darth Vader holder for the Echo Dot in his office.

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Description

We have these in most rooms of our house. Because we have so many and we have FireTVs with Alexa built in, we had to use different names and prioritize devices. These are good speakers and help with smart house control.

Amazon Echo Dot (newest model) – Vibrant sounding speaker, Designed for Alexa+, Great for bedrooms, dining rooms and offices, Charcoal
Enhance your smart home hub experience with the Charcoal colored 2022 Echo Dot 5th generation smart speaker featuring Alexa capabilities from Amazon. Shop today.
Amazon Echo Dot Max (newest model), Alexa speaker with room-filling sound and nearly 3x bass, Great for living rooms and medium-sized spaces, Designed for Alexa+, Graphite
Echo Dot Max delivers premium auto-adapting sound with built-in smart home features. Fills any room with deep bass & clear sound for all your favorite music services.
Amazon.com: Amazon Echo Show 5 (newest model), Smart display, Designed for Alexa+, 2x the bass and clearer sound, Charcoal : Amazon Devices & Accessories
Amazon.com: Amazon Echo Show 5 (newest model), Smart display, Designed for Alexa+, 2x the bass and clearer sound, Charcoal : Amazon Devices & Accessories

 

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Echo Devices | Amazon
Online shopping for Amazon Devices & Accessories from a great selection of Smart Speakers, Smart Displays, Receivers & Amplifiers & more at everyday low prices.
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We are using smart house technology to give Steve more independence throughout the house. We use a combination of hardware and apps to make this work.

On a separate note, I have generally been opposed to smart house technology because I work in data and security and understand the risk. However, I realized that the benefit outweighs the risk. These apps definitely improved my quality of life. – Steve

Additional information

Steve’s ALS stage

Late, Middle
ALS toolboxes

We are using these stages to help you understand when these tools and apps were most effective for Steve.

EARLY STAGE | July 2021 – November 2022

From first symptoms to the walker

Key points
• No ventilation
• Able to walk without help
• Limited upper limb function

MIDDLE STAGE | November 2022 – August 2023

From walker to power chair

Key points
• Limited ventilation with an NIV
• Help needed to transfer
• Limited upper and lower limb function
• Work transitions
• Supplemental nutrition through feeding tube

LATE STAGE | August 2023 – Current

Power chair

Key points
• 50% to full time ventilation
• From NIV to tracheostomy
• Lift transfers
• Loss of limb function
• Most nutrition through feeding tube

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