Data on Wheels ~ ALS

Kasa smart lights

Kasa smart lights

We bought our first smart light before Steve had ALS. We thought they would be fun to have. Before Alexa, we used the Kasa app on our phones to run the lights in our house. And they are fun!  

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Description

Kasa is Alexa enabled which lets us add voice control to our lights and plugs. Steve can use the app and voice control. We have been very pleased with these lights.

Kasa Smart Light Bulbs, Full Color Changing Dimmable Smart WiFi Bulbs Compatible with Alexa and Google Home, A19, 60 W 800 Lumens,2.4Ghz only, No Hub Required, 2-Pack (KL125P2), Multicolor
Kasa Smart Light Bulbs, Full Color Changing Dimmable Smart WiFi Bulbs Compatible with Alexa and Google Home, A19, 60 W 800 Lumens,2.4Ghz only, No Hub Required, 2-Pack (KL125P2), Multicolor – Amazon.com
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We are using smart house technology to give Steve more independence throughout the house. We use a combination of hardware and apps to make this work.

On a separate note, I have generally been opposed to smart house technology because I work in data and security and understand the risk. However, I realized that the benefit outweighs the risk. These apps definitely improved my quality of life. – Steve

Additional information

Steve’s ALS stage

Early, Late, Middle
ALS toolboxes

We are using these stages to help you understand when these tools and apps were most effective for Steve.

EARLY STAGE | July 2021 – November 2022

From first symptoms to the walker

Key points
• No ventilation
• Able to walk without help
• Limited upper limb function

MIDDLE STAGE | November 2022 – August 2023

From walker to power chair

Key points
• Limited ventilation with an NIV
• Help needed to transfer
• Limited upper and lower limb function
• Work transitions
• Supplemental nutrition through feeding tube

LATE STAGE | August 2023 – Current

Power chair

Key points
• 50% to full time ventilation
• From NIV to tracheostomy
• Lift transfers
• Loss of limb function
• Most nutrition through feeding tube

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Copyright 2025-2026 | Steve Hughes, Data on Wheels