Description
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Amazon Echo
We have several Amazon Echo smart speakers in the house. We use several variations of Echoes including one with video. With the devices throughout the house, we are able to use Alexa wherever we are which is really convenient. Steve got a Darth Vader holder for the Echo Dot in his office.
We are using smart house technology to give Steve more independence throughout the house. We use a combination of hardware and apps to make this work.
On a separate note, I have generally been opposed to smart house technology because I work in data and security and understand the risk. However, I realized that the benefit outweighs the risk. These apps definitely improved my quality of life. – Steve
Additional information
| Steve’s ALS stage | Late, Middle |
|---|---|
| ALS toolboxes |
We are using these stages to help you understand when these tools and apps were most effective for Steve.
EARLY STAGE | July 2021 – November 2022
From first symptoms to the walker
Key points
• No ventilation
• Able to walk without help
• Limited upper limb function
MIDDLE STAGE | November 2022 – August 2023
From walker to power chair
Key points
• Limited ventilation with an NIV
• Help needed to transfer
• Limited upper and lower limb function
• Work transitions
• Supplemental nutrition through feeding tube
LATE STAGE | August 2023 – Current
Power chair
Key points
• 50% to full time ventilation
• From NIV to tracheostomy
• Lift transfers
• Loss of limb function
• Most nutrition through feeding tube
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