Inflatable neck support

Steve used a large inflatable travel pillow to provide much needed neck support while being dressed by his caregivers.

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Description

When Steve used to get dressed in his chair, we used this pillow to keep his head from flopping forward. Steve would put his arms in the sides and his head in the top. This worked well for us. We used it until he got his tracheostomy.

Additional information

Steve’s ALS stage

Middle

ALS toolboxes

We are using these stages to help you understand when these tools and apps were most effective for Steve.

EARLY STAGE | July 2021 – November 2022

From first symptoms to the walker

Key points
• No ventilation
• Able to walk without help
• Limited upper limb function

MIDDLE STAGE | November 2022 – August 2023

From walker to power chair

Key points
• Limited ventilation with an NIV
• Help needed to transfer
• Limited upper and lower limb function
• Work transitions
• Supplemental nutrition through feeding tube

LATE STAGE | August 2023 – Current

Power chair

Key points
• 50% to full time ventilation
• From NIV to tracheostomy
• Lift transfers
• Loss of limb function
• Most nutrition through feeding tube

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