Description
When Steve used to get dressed in his chair, we used this pillow to keep his head from flopping forward. Steve would put his arms in the sides and his head in the top. This worked well for us. We used it until he got his tracheostomy.
Steve used a large inflatable travel pillow to provide much needed neck support while being dressed by his caregivers.
When Steve used to get dressed in his chair, we used this pillow to keep his head from flopping forward. Steve would put his arms in the sides and his head in the top. This worked well for us. We used it until he got his tracheostomy.
| Steve’s ALS stage | Middle |
|---|---|
| ALS toolboxes |
We are using these stages to help you understand when these tools and apps were most effective for Steve.
From first symptoms to the walker
Key points
• No ventilation
• Able to walk without help
• Limited upper limb function
From walker to power chair
Key points
• Limited ventilation with an NIV
• Help needed to transfer
• Limited upper and lower limb function
• Work transitions
• Supplemental nutrition through feeding tube
Power chair
Key points
• 50% to full time ventilation
• From NIV to tracheostomy
• Lift transfers
• Loss of limb function
• Most nutrition through feeding tube
Copyright 2025-2026 | Steve Hughes, Data on Wheels
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