Steve used voice amplification to make sure he could be heard while wearing a ventilator mask. ChatterVox worked for him.
When I needed my NIV more during the day, we tried ChatterVox to amplify my voice. It worked okay. The headset mic was pretty flexible. It worked best when positioned close to a vent hole in the mask. We later purchased the neck microphone which gave us even more flexibility.
We mounted the speaker on the wheelchair both on the armrest and by the headrest. When it was on the headrest, it worked well for close conversations. People could still hear me when they leaned in closer.
| Steve’s ALS stage | Middle |
|---|---|
| ALS toolboxes |
We are using these stages to help you understand when these tools and apps were most effective for Steve.
From first symptoms to the walker
Key points
• No ventilation
• Able to walk without help
• Limited upper limb function
From walker to power chair
Key points
• Limited ventilation with an NIV
• Help needed to transfer
• Limited upper and lower limb function
• Work transitions
• Supplemental nutrition through feeding tube
Power chair
Key points
• 50% to full time ventilation
• From NIV to tracheostomy
• Lift transfers
• Loss of limb function
• Most nutrition through feeding tube
Copyright 2025-2026 | Steve Hughes, Data on Wheels
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