We decided to buy a Go Chair to give Steve the ability to get around easier. It breaks down into four parts for easy transport. We also traveled with this chair through airports with the ability to go to the airplane door. This is the chair we used on our trip to Disney. Steve really liked the chair.
Please be aware of the following. We did not use insurance for this chair. We were correctly advised to wait. Insurance only covers one chair every five years. If you are interested in a similar chair, we recommend contacting Team Gleason. They have loaner chairs available.
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| Steve’s ALS stage | Middle |
|---|---|
| ALS toolboxes |
We are using these stages to help you understand when these tools and apps were most effective for Steve.
From first symptoms to the walker
Key points
• No ventilation
• Able to walk without help
• Limited upper limb function
From walker to power chair
Key points
• Limited ventilation with an NIV
• Help needed to transfer
• Limited upper and lower limb function
• Work transitions
• Supplemental nutrition through feeding tube
Power chair
Key points
• 50% to full time ventilation
• From NIV to tracheostomy
• Lift transfers
• Loss of limb function
• Most nutrition through feeding tube
Copyright 2025-2026 | Steve Hughes, Data on Wheels
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