Additional information
| Steve’s ALS stage | Late, Middle |
|---|---|
| Home modification permanence | Semipermanent |
| ALS toolboxes |
Outdoor wheelchair elevator
We bought an elevator from a family in Alabama. Our goal was to find a good way to get Steve down to the driveway from our deck. Our garage is a tuck under, and our deck is above the driveway, basically a second story height. Sheila found this elevator and some friends from church picked it up and prepped our deck and driveway for installation. We had it professionally installed and inspected with the help of Kentucky Vocational Rehabilitation. We used the elevator extensively for about a year. It was nice while Steve was able to drive on his own.…
We are using these stages to help you understand when these tools and apps were most effective for Steve.
EARLY STAGE | July 2021 – November 2022
From first symptoms to the walker
Key points
• No ventilation
• Able to walk without help
• Limited upper limb function
MIDDLE STAGE | November 2022 – August 2023
From walker to power chair
Key points
• Limited ventilation with an NIV
• Help needed to transfer
• Limited upper and lower limb function
• Work transitions
• Supplemental nutrition through feeding tube
LATE STAGE | August 2023 – Current
Power chair
Key points
• 50% to full time ventilation
• From NIV to tracheostomy
• Lift transfers
• Loss of limb function
• Most nutrition through feeding tube
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