Data on Wheels ~ ALS

Suction machine
Suction machine - Image 2
Suction machine - Image 3

Suction machine

We started using this suction machine with Steve’s noninvasive ventilator to help keep his mouth clear. After his tracheostomy, we use it for nose and lung suction as well.

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Description

We got our suction machine around the same time we got our NIV. At the beginning, we used it sparingly. As Steve’s abilities to swallow and breathe continued to diminish, we used it more frequently. We now use it regularly. This machine works well with his tracheostomy.

The suction machine is very helpful when brushing his teeth. When he could not brush his own teeth anymore, he also couldn’t spit very well. The suction machine made it easier for him and his caregivers.

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SU100DC Portable AC/DC Suction Machine – Sunset Healthcare Solutions
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Additional information

Steve’s ALS stage

Late, Middle
Ventilation type

Invasive, Noninvasive
ALS toolboxes

We are using these stages to help you understand when these tools and apps were most effective for Steve.

EARLY STAGE | July 2021 – November 2022

From first symptoms to the walker

Key points
• No ventilation
• Able to walk without help
• Limited upper limb function

MIDDLE STAGE | November 2022 – August 2023

From walker to power chair

Key points
• Limited ventilation with an NIV
• Help needed to transfer
• Limited upper and lower limb function
• Work transitions
• Supplemental nutrition through feeding tube

LATE STAGE | August 2023 – Current

Power chair

Key points
• 50% to full time ventilation
• From NIV to tracheostomy
• Lift transfers
• Loss of limb function
• Most nutrition through feeding tube

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