Data on Wheels ~ ALS

Little Sucker oral and nasal suction device
Little Sucker oral and nasal suction device - Image 2

Little Sucker oral and nasal suction device

This nasal suction device helps clear running noses and mucus from our sinuses. As an ALS patient with a tracheostomy,, I can’t blow my nose anymore. This is a great help!

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Description

Since Steve’s tracheostomy, he can no longer blow his nose. He has dealt with seasonal allergies his entire life, so this is a problem. We tried using a mouth yankauer, but it was too big for Steve’s nose even though Steve has a big nose. Not to mention it was a little gross.

Our respiratory therapist brought us one of these to try. They work great to clean out Steve’s sinuses. We have not sucked his brains out, yet. Our respiratory therapist orders them for us but Sheila found similar ones online. it connects to the tubing of our suction machine and clears his sinuses and helps with drainage that causes coughing.

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Additional information

Steve’s ALS stage

Late
Ventilation type

Invasive
ALS toolboxes

We are using these stages to help you understand when these tools and apps were most effective for Steve.

EARLY STAGE | July 2021 – November 2022

From first symptoms to the walker

Key points
• No ventilation
• Able to walk without help
• Limited upper limb function

MIDDLE STAGE | November 2022 – August 2023

From walker to power chair

Key points
• Limited ventilation with an NIV
• Help needed to transfer
• Limited upper and lower limb function
• Work transitions
• Supplemental nutrition through feeding tube

LATE STAGE | August 2023 – Current

Power chair

Key points
• 50% to full time ventilation
• From NIV to tracheostomy
• Lift transfers
• Loss of limb function
• Most nutrition through feeding tube

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