Data on Wheels ~ ALS

Back massager with heat

Back massager with heat

This massage pad comes with heat. Steve primarily uses the massage function for comfort and therapy while he is away from home.

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Description

Steve uses this massager whenever he is away from his Ghost Bed at home. We put it under his alternating air mattress pad at the hospital and hotel. He has also laid it across his chest which helped with breaking up his congestion.

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Additional information

Steve’s ALS stage

Late, Middle
ALS toolboxes

We are using these stages to help you understand when these tools and apps were most effective for Steve.

EARLY STAGE | July 2021 – November 2022

From first symptoms to the walker

Key points
• No ventilation
• Able to walk without help
• Limited upper limb function

MIDDLE STAGE | November 2022 – August 2023

From walker to power chair

Key points
• Limited ventilation with an NIV
• Help needed to transfer
• Limited upper and lower limb function
• Work transitions
• Supplemental nutrition through feeding tube

LATE STAGE | August 2023 – Current

Power chair

Key points
• 50% to full time ventilation
• From NIV to tracheostomy
• Lift transfers
• Loss of limb function
• Most nutrition through feeding tube

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