Neck stabilizer pillows

These neck support pillows are a key part of keeping Steve’s head stable while in bed or on the move in his power wheelchair.

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Description

When Steve’s neck started to weaken and he struggled to maintain control of his head, we purchased these pillows to help. In the beginning, he used the pillows in bed to stabilize his head.

As the disease progressed, we started using the individual pillows to support his head in the wheelchair. Each of the individual pillows has Velcro on them which is normally used to arrange the pillows on the base. The pillows with Velcro also “stick” to the headrest of my power chair. This lets us position Steve’s head, so he is comfortable.

Additional information

Steve’s ALS stage

Late, Middle

ALS toolboxes

We are using these stages to help you understand when these tools and apps were most effective for Steve.

EARLY STAGE | July 2021 – November 2022

From first symptoms to the walker

Key points
• No ventilation
• Able to walk without help
Limited upper limb function

MIDDLE STAGE | November 2022 – August 2023

From walker to power chair

Key points
• Limited ventilation with an NIV
• Help needed to transfer
Limited upper and lower limb function
• Work transitions
Supplemental nutrition through feeding tube

LATE STAGE | August 2023 – Current

Power chair

Key points
• 50% to full time ventilation
• From NIV to tracheostomy
Lift transfers
Loss of limb function
Most nutrition through feeding tube

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