Data on Wheels ~ ALS

Bed wedge

Bed wedge

When traveling, we used this bed wedge on hotel beds. Steve needed this to support his breathing while using his NIV. We do not need it at home because we have an adjustable bed.

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HealthSmart Bed Wedge Pillow and Triangle Wedge with Elevated Incline for Neck Pain,Headaches,Reflux,Shoulders,Back Pain,Foot Support,Knee Pain or Restless Leg Syndrome,24x24x12 inches,Blue Moroccan
Buy HealthSmart Bed Wedge Pillow and Triangle Wedge with Elevated Incline for Neck Pain,Headaches,Reflux,Shoulders,Back Pain,Foot Support,Knee Pain or Restless Leg Syndrome,24x24x12 inches,Blue Moroccan on Amazon.com âś“ FREE SHIPPING on qualified orders
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Additional information

Steve’s ALS stage

Middle
ALS toolboxes

We are using these stages to help you understand when these tools and apps were most effective for Steve.

EARLY STAGE | July 2021 – November 2022

From first symptoms to the walker

Key points
• No ventilation
• Able to walk without help
• Limited upper limb function

MIDDLE STAGE | November 2022 – August 2023

From walker to power chair

Key points
• Limited ventilation with an NIV
• Help needed to transfer
• Limited upper and lower limb function
• Work transitions
• Supplemental nutrition through feeding tube

LATE STAGE | August 2023 – Current

Power chair

Key points
• 50% to full time ventilation
• From NIV to tracheostomy
• Lift transfers
• Loss of limb function
• Most nutrition through feeding tube

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