Description
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Call button
While using the NIV, Steve had difficulty communicating what he needed at night. This call button gave him the ability to use his feet and legs to alert his caregivers when he needed something. This allowed them to sleep with less worries about missing Steve’s needs. The call button is very sensitive, making it perfect for those of us with limited mobility.
Additional information
| Steve’s ALS stage | Middle |
|---|---|
| ALS toolboxes |
We are using these stages to help you understand when these tools and apps were most effective for Steve.
EARLY STAGE | July 2021 – November 2022
From first symptoms to the walker
Key points
• No ventilation
• Able to walk without help
• Limited upper limb function
MIDDLE STAGE | November 2022 – August 2023
From walker to power chair
Key points
• Limited ventilation with an NIV
• Help needed to transfer
• Limited upper and lower limb function
• Work transitions
• Supplemental nutrition through feeding tube
LATE STAGE | August 2023 – Current
Power chair
Key points
• 50% to full time ventilation
• From NIV to tracheostomy
• Lift transfers
• Loss of limb function
• Most nutrition through feeding tube
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