Bendy straws

When Steve couldn’t raise a glass any more, we started using bendy straws. Their flexibility of the straws were key to allowing him to drink easily.

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Description

Bendy straws went with us everywhere. Steve was to use them to drink everything even beer. He got some funny looks when Sheila would drop a hot pink bendy straw in his beer mug.

Additional information

Steve’s ALS stage

Early

ALS toolboxes

We are using these stages to help you understand when these tools and apps were most effective for Steve.

EARLY STAGE | July 2021 – November 2022

From first symptoms to the walker

Key points
• No ventilation
• Able to walk without help
• Limited upper limb function

MIDDLE STAGE | November 2022 – August 2023

From walker to power chair

Key points
• Limited ventilation with an NIV
• Help needed to transfer
• Limited upper and lower limb function
• Work transitions
• Supplemental nutrition through feeding tube

LATE STAGE | August 2023 – Current

Power chair

Key points
• 50% to full time ventilation
• From NIV to tracheostomy
• Lift transfers
• Loss of limb function
• Most nutrition through feeding tube

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