Description
Bendy straws went with us everywhere. Steve was to use them to drink everything even beer. He got some funny looks when Sheila would drop a hot pink bendy straw in his beer mug.
When Steve couldn’t raise a glass any more, we started using bendy straws. Their flexibility of the straws were key to allowing him to drink easily.
Bendy straws went with us everywhere. Steve was to use them to drink everything even beer. He got some funny looks when Sheila would drop a hot pink bendy straw in his beer mug.
| Steve’s ALS stage | Early |
|---|---|
| ALS toolboxes |
We are using these stages to help you understand when these tools and apps were most effective for Steve.
From first symptoms to the walker
Key points
• No ventilation
• Able to walk without help
• Limited upper limb function
From walker to power chair
Key points
• Limited ventilation with an NIV
• Help needed to transfer
• Limited upper and lower limb function
• Work transitions
• Supplemental nutrition through feeding tube
Power chair
Key points
• 50% to full time ventilation
• From NIV to tracheostomy
• Lift transfers
• Loss of limb function
• Most nutrition through feeding tube
Copyright 2025-2026 | Steve Hughes, Data on Wheels
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