Data on Wheels ~ ALS

Feeding tube holder

Feeding tube holder

After dealing with six or more inches of feeding tube protruding from the stomach, which was both annoying and unsightly under clothing, we sought alternatives to uncomfortable medical tape. This PD belt-style feeding tube holder provided an easy-to-use, comfortable solution that effectively concealed the tube under shirts. The holder eliminates the pain of removing tape from body hair and prevents the tube from hanging down or getting caught on clothing during daily activities and sleep.

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Description

My first two feeding tubes were the standard or “normal” type with the six or more inches of the feeding tube sticking outside of my stomach. This length of tube was annoying and unsightly under my shirt. After trying to tape it in place with medical tape for a while, we went looking for a better option. We liked this holder best. It was easy to use and hid the tube very well. Equally important it was comfortable for Steve to wear.

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Additional information

Steve’s ALS stage

Middle
ALS toolboxes

We are using these stages to help you understand when these tools and apps were most effective for Steve.

EARLY STAGE | July 2021 – November 2022

From first symptoms to the walker

Key points
• No ventilation
• Able to walk without help
• Limited upper limb function

MIDDLE STAGE | November 2022 – August 2023

From walker to power chair

Key points
• Limited ventilation with an NIV
• Help needed to transfer
• Limited upper and lower limb function
• Work transitions
• Supplemental nutrition through feeding tube

LATE STAGE | August 2023 – Current

Power chair

Key points
• 50% to full time ventilation
• From NIV to tracheostomy
• Lift transfers
• Loss of limb function
• Most nutrition through feeding tube

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