Description
After Steve got his feeding tube, the nutritionist prescribed Jevity 1.2. We used this formula for supplemental nutrition. When Steve got his
feeding tube, he was still eating most of his meals by mouth with Sheila’s help, of course. Every time he used this formula, he got severe GI pain and gas.
After a few months and some research, we asked our nutritionist at the ALS Clinic to prescribe an organic alternative. The first formula he prescribed was not available from our DME provider. They recommended Compleat 1.4. This formula settled better than Jevity but still caused some discomfort. We used this as supplemental nutrition, but we started using more Compleat because Steve continued to lose weight.
All this changed after Steve’s tracheostomy. Steve lost more weight during his extended hospital stay. He had a lot of issues with Compleat so the nutritionist at the hospital tried a variety of other formulas to see if something worked better. None of them worked great. We had heard about Kate Farms from various other people who have feeding tubes. We received a sample from them. Steve tolerated it well, so we switched to Kate Farms 1.4. Steve now uses it as his primary source of nutrition. He really likes the calories in this formula, 455 calories. He uses it four times a day.
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Compleat® Standard 1.4
Compleat® Standard 1.4 is a nutritionally complete standard tube feeding formula rooted in wholesome ingredients. Compleat® Standard formulas are plant-based and vegan standard tube feeding formulas with soluble and insoluble fibers to help support digestive health. This wholesome plant-based formula has a delicious vanilla flavor for tube feeding or drinking, and was chosen most delicious vanilla plant-based standard formula†.
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We are using these stages to help you understand when these tools and apps were most effective for Steve.
EARLY STAGE | July 2021 – November 2022
From first symptoms to the walker
Key points
• No ventilation
• Able to walk without help
• Limited upper limb function
MIDDLE STAGE | November 2022 – August 2023
From walker to power chair
Key points
• Limited ventilation with an NIV
• Help needed to transfer
• Limited upper and lower limb function
• Work transitions
• Supplemental nutrition through feeding tube
LATE STAGE | August 2023 – Current
Power chair
Key points
• 50% to full time ventilation
• From NIV to tracheostomy
• Lift transfers
• Loss of limb function
• Most nutrition through feeding tube
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