Data on Wheels ~ ALS

Large generator

Large generator

We knew we needed to be prepared for a power outage as Steve’s dependence on ventilation increased. Whole house generators are quite expensive. We also wanted something we could travel with. We knew we needed to be prepared for a power outage as Steve’s dependence on Ventilation increased. Whole house generators are quite expensive. We also wanted something we could travel with. The generator we chose can power appliances and has wheels with a pull-out handle. We can travel with it in our van. It powered the NIV and Steve’s laptop from Kentucky to Minnesota without issue. This also gave…

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One other note, this generator works as a power strip. All of Steve’s equipment is plugged into it so if we have a power outage his ventilator continues to work.

This generator also comes with solar panels. This will give us additional time on the generator in the case of an extended power outage.

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Anker SOLIX F2000 Solar Generator, 2048Wh Portable Power Station with LiFePO4 Batteries and 2× 200W Solar Panel, GaNPrime Technology, 4 AC Outlets Up to 2400W for Home, Power Outages, Camping, and RVs
Amazon.com : Anker SOLIX F2000 Solar Generator, 2048Wh Portable Power Station with LiFePO4 Batteries and 2× 200W Solar Panel, GaNPrime Technology, 4 AC Outlets Up to 2400W for Home, Power Outages, Camping, and RVs : Patio, Lawn & Garden
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Backup power is essential when your basic needs like breathing require a machine. Most of the equipment we use has battery power like our ventilator and our lifts. The onboard power is usually sufficient but typically only lasts 4 – 8 hours depending on usage. But we wanted to be prepared for power outages and travel.

We had a situation where Steve’s NIV ran out of battery power at an event. We were able to get it plugged in, but it was going to take hours to charge before we could go home safely. Friends and family jumped into help. Our friends got us the Ryobi battery solution and our son in law brought our large generator from home about an hour away. We got home safely, and the importance of backup power was reinforced.

Ventilation Backup Power Estimates

Additional information

Steve’s ALS stage

Late, Middle
ALS toolboxes

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