Data on Wheels ~ ALS

Small generator

Small generator

After Steve’s tracheostomy, we discovered that the new ventilator required more power than the Ryobi batteries could handle. We made the decision to get a smaller generator. The advantages were more power than the batteries and more portable than the large generator. It runs the ventilator and the Tobii device for over 7 hours and can be hung on the back of Steve’s power chair.

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The generator we purchased is no longer available. Here is an equivalent option.

Amazon.com : Jackery Explorer 1000 v2 Portable Power Station,1070Wh LiFePO4 Battery,1500W AC/100W USB-C Output, 1 Hr Fast Charge, Solar Generator for Camping,Emergency, RV, Off-Grid Living(Solar Panel Optional) : Patio, Lawn & Garden
Amazon.com : Jackery Explorer 1000 v2 Portable Power Station,1070Wh LiFePO4 Battery,1500W AC/100W USB-C Output, 1 Hr Fast Charge, Solar Generator for Camping,Emergency, RV, Off-Grid Living(Solar Panel Optional) : Patio, Lawn & Garden
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Backup power is essential when your basic needs like breathing require a machine. Most of the equipment we use has battery power like our ventilator and our lifts. The onboard power is usually sufficient but typically only lasts 4 – 8 hours depending on usage. But we wanted to be prepared for power outages and travel.

We had a situation where Steve’s NIV ran out of battery power at an event. We were able to get it plugged in, but it was going to take hours to charge before we could go home safely. Friends and family jumped into help. Our friends got us the Ryobi battery solution and our son in law brought our large generator from home about an hour away. We got home safely, and the importance of backup power was reinforced.

Ventilation Backup Power Estimates

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Steve’s ALS stage

Late
ALS toolboxes

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