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We purchased our first Ring doorbell while still in Minnesota. It gave us visibility to people at our front door which was downstairs. When we got to Kentucky, we added another doorbell, so we had both primary entrances covered. We added cameras outside the house to watch the dog. It was also a good addition to security. We have since added some cameras inside the house. These cameras allow Sheila to keep an eye on me if she is doing something inside or outside the house. The combination of cameras has improved our convenience, security, and safety.
We are using smart house technology to give Steve more independence throughout the house. We use a combination of hardware and apps to make this work.
On a separate note, I have generally been opposed to smart house technology because I work in data and security and understand the risk. However, I realized that the benefit outweighs the risk. These apps definitely improved my quality of life. – Steve
| Steve’s ALS stage | Early, Late, Middle |
|---|---|
| ALS toolboxes |
We are using these stages to help you understand when these tools and apps were most effective for Steve.
From first symptoms to the walker
Key points
• No ventilation
• Able to walk without help
• Limited upper limb function
From walker to power chair
Key points
• Limited ventilation with an NIV
• Help needed to transfer
• Limited upper and lower limb function
• Work transitions
• Supplemental nutrition through feeding tube
Power chair
Key points
• 50% to full time ventilation
• From NIV to tracheostomy
• Lift transfers
• Loss of limb function
• Most nutrition through feeding tube
Copyright 2025-2026 | Steve Hughes, Data on Wheels
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