Shower chair

This shower chair is one of our highly used tools. In the middle stage of Steve’s progression, we used this a lot as part of our morning routine. We would move Steve to the bathroom to get his teeth brushed, hair combed, sponge bathed or showered, and dressed. As he experienced more bowel movement issues and struggled to sit on the toilet, we started using it for toileting. In the late stage, he uses it for bowel movements and showers, though not at the same time.

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ALS bathroom humor at Mikayla’s wedding

We were at the wedding venue early for pictures. Because we were there all day, I had my boys bring more stuff with us just in case we needed it. You know the routine, if you don’t bring it, you’ll need it for sure.  One of the things we brought was my shower chair which I also use for a toilet. That meant we also had to bring the Hoyer lift.

As fate would have it, I had to have a bowel movement between the pictures and the ceremony, perfect timing actually. I told the boys to get mom, the shower chair, and the lift and make sure the bathroom was big enough for everything or would need to find a private or secluded space to use. The bathroom was big enough.

So, there we were, all the equipment, three helpers and me half naked in the middle of bathroom between the urinals and the stalls. With this disease, nothing is ever easy or fast.

We had a few guys who needed to use the restroom while we were there. Keep in mind we were in the middle of the bathroom and Sheila was there as well. Here’s what we found funny. Most of them were embarrassed or uncomfortable as soon as they stepped in the

door and immediately turned around and left. A couple of them scooted by us to use a stall.

The funniest and most awkward for my wife was when someone slipped beside her to use a urinal. We all had a good laugh over that after getting over the surprise that it happened.

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Early, Late, Middle

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