Giraffe Bottle Tower System

As it became more difficult for Steve to hold a cup and use regular straws, we switched to a Giraffe Bottle Tower System. The basic setup is a 24-ounce water bottle with a large straw. The straw has a one-way valve which keeps liquid in the straw making it easier for him to use. The straw is fed through a bendable piece that holds its shape. This combination allowed Steve to drink water and other non-carbonated liquids with limited support.

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Description

As it became more difficult for Steve to hold a cup and use regular straws, we switched to a Giraffe Bottle Tower System. The basic setup is a 24-ounce water bottle with a large straw. The straw has a one-way valve which keeps liquid in the straw making it easier for him to use. The straw is fed through a bendable piece that holds its shape. This combination allowed Steve to drink water and other non-carbonated liquids with limited support.

Even though you can use it for hot drinks, we found the insulated bottle a better option for Steve’s coffee. It keeps coffee warm and his other drinks not tasting like coffee.

We purchased some accessories. We got an over the shoulder holder and weighted table stand. These were necessary because the bottles do not stand on their own.

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Additional information

Steve’s ALS stage

Early, Middle

ALS toolboxes

We are using these stages to help you understand when these tools and apps were most effective for Steve.

EARLY STAGE | July 2021 – November 2022

From first symptoms to the walker

Key points
• No ventilation
• Able to walk without help
• Limited upper limb function

MIDDLE STAGE | November 2022 – August 2023

From walker to power chair

Key points
• Limited ventilation with an NIV
• Help needed to transfer
• Limited upper and lower limb function
• Work transitions
• Supplemental nutrition through feeding tube

LATE STAGE | August 2023 – Current

Power chair

Key points
• 50% to full time ventilation
• From NIV to tracheostomy
• Lift transfers
• Loss of limb function
• Most nutrition through feeding tube

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