Description
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While Steve was still able to use his fingers with the RollerMouse, his fingers started to curl. This made it difficult to use the mouse. We purchased finger splints to keep his index finger straight. This worked well, but extended use can be painful. Sheila would have to massage his fingers to relieve the stiffness and pain.
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| Steve’s ALS stage | Early, Middle |
|---|---|
| ALS toolboxes |
We are using these stages to help you understand when these tools and apps were most effective for Steve.
From first symptoms to the walker
Key points
• No ventilation
• Able to walk without help
• Limited upper limb function
From walker to power chair
Key points
• Limited ventilation with an NIV
• Help needed to transfer
• Limited upper and lower limb function
• Work transitions
• Supplemental nutrition through feeding tube
Power chair
Key points
• 50% to full time ventilation
• From NIV to tracheostomy
• Lift transfers
• Loss of limb function
• Most nutrition through feeding tube
Copyright 2025-2026 | Steve Hughes, Data on Wheels
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